Apoio social online entre cuidadores de crianças e jovens: revisão integrativa em rede da literatura
DOI:
https://doi.org/10.22235/cp.v14i1.2160Palabras clave:
análise de redes, apoio social online, cuidadores, grupos de apoio, revisão integrativaResumen
A Internet pode ser uma fonte de apoio social que auxilia no aprimoramento de competências parentais. Objetivou-se analisar o panorama internacional das pesquisas que investigaram apoio social online entre cuidadores de crianças e jovens. O estudo consiste em uma Revisão Integrativa em Rede da Literatura (RIRL) que aborda a literatura como uma rede de associação de variáveis e a analisa com base na Teoria dos Grafos. A busca ocorreu em duas bases de dados e os estudos foram filtrados por meio de dois testes de relevância. Foram resgatados 36 artigos, cujos resultados foram convertidos em 53 variáveis, que foram categorizadas conforme suas relações. Considerando-se a recorrência de relações entre as variáveis, conclui-se que “Participação em grupos online” favorece o “Apoio social”, a “Conexão com outras pessoas na mesma situação” e o surgimento do “Senso de comunidade”. Outros achados são discutidos de acordo com as medidas de redes.
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Cantwell, J., Muldoon, O.T., & Gallagher, S. (2014). Social support and mastery influence the association between stress and poor physical health in parents caring for children with developmental disabilities. Research in Developmental Disabilities, 35(9), 2215-2223. doi: 10.1016/j.ridd.2014.05.012.
Clarke, J.N., & Van Ameron, G. (2015). Parents Whose Children have Oppositional Defiant Disorder Talk to One Another on the Internet. Child and Adolescent Social Work Journal, 32(4), 341-350. doi: 10.1007/s10560-015-0377-5.
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Fletcher, R., & StGeorge, J. (2011). Heading into fatherhood—nervously: Support for fathering from online dads. Qualitative Health Research, 21(8), 1101-1114. doi: 10.1177/1049732311404903.
Gabbert, T.I., Metze, B., Bührer, C., & Garten, L. (2013). Use of social networking sites by parents of very low birth weight infants: experiences and the potential of a dedicated site. European Journal of Pediatrics, 172(12), 1671-1677. doi: 10.1007/s00431-013-2067-7.
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Glenn, A.D. (2015). Using online health communication to manage chronic sorrow: Mothers of children with rare diseases speak. Journal of Pediatric Nursing, 30(1), 17-24. doi: 10.1016/j.pedn.2014.09.013.
Hall, W., & Irvine, V. (2009). E‐communication among mothers of infants and toddlers in a community‐based cohort: A content analysis. Journal of Advanced Nursing, 65(1), 175-183. doi: 10.1111/j.1365-2648.2008.04856.x.
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Hudson, D.B., Campbell-Grossman, C., & Hertzog, M. (2012). Effects of an internet intervention on mothers’ psychological, parenting, and health care utilization outcomes. Issues in Comprehensive Pediatric Nursing, 35(3-4), 176-193. doi: 10.3109/01460862.2012.734211.
Jacobs, R., Boyd, L., Brennan, K., Sinha, C.K., & Giuliani, S. (2016). The importance of social media for patients and families affected by congenital anomalies: A Facebook cross-sectional analysis and user survey. Journal of Pediatric Surgery, 51(11), 1766-1771. doi: 10.1016/j.jpedsurg.2016.07.008.
Johnson, S.A. (2015). ‘Intimate mothering publics’: comparing face-to-face support groups and Internet use for women seeking information and advice in the transition to first-time motherhood. Culture, Health & Sexuality, 17(2), 237-251. doi: 10.1080/13691058.2014.968807.
Kirk, S., & Milnes, L. (2016). An exploration of how young people and parents use online support in the context of living with cystic fibrosis. Health Expectations, 19(2), 309-321. doi: 10.1111/hex.12352.
Laniado, D., Volkovich, Y., Kappler, K., & Kaltenbrunner, A. (2016). Gender homophily in online dyadic and triadic relationships. EPJ Data Science, 5(19), 1-23. doi: 10.1140/epjds/s13688-016-0080-6.
Lee, R.L., & Kvasny, L. (2014). Understanding the role of social media in online health: A global perspective on online social support. First Monday, 19(1). doi: 10.5210/fm.v19i1.4048.
Lewis, T.G. (2009). Network science: Theory and practice. Hoboken, NJ, EUA: John Wiley & Sons, Inc.
Lin, T.C., Hsu, J.S.C., Cheng, H.L., & Chiu, C.M. (2015). Exploring the relationships between receiving and offering online social support: A dual social support model. Information & Management, 52(3), 371-383. doi: 10.1016/j.im.2015.01.003.
Lovell, B., Moss, M., & Wetherell, M.A. (2012). With a little help from my friends: Psychological, endocrine and health corollaries of social support in parental caregivers of children with autism or ADHD. Research in Developmental Disabilities, 33(2), 682-687. doi: 10.1016/j.ridd.2011.11.014.
Martin, S., Roderick, M.C., Lockridge, R., Toledo-Tamula, M.A., Baldwin, A., Knight, P., & Wolters, P. (2016). Feasibility and preliminary efficacy of an internet support group for parents of a child with neurofibromatosis type 1: a pilot study. Journal of genetic counseling, 26(3), 576-585. doi: 10.1007/s10897-016-0031-1.
Martin, S., Wolters, P.L., Baldwin, A., Roderick, M.C., Toledo-Tamula, M.A., Gillespie, A., & Widemann, B. (2014). Attitudes about internet support groups among adolescents and young adults with neurofibromatosis type 1 and their parents. Journal of Genetic Counseling, 3(26), 576-585. doi: 10.1007/s10897-016-0031-1.
Mendes, K.D.S., Silveira R.C.C.P., & Galvão, C.M. (2008). Revisão integrativa: método de pesquisa para a incorporação de evidências na saúde e na enfermagem. Texto Contexto Enfermagem, 17(4), 758-64. Recuperado de http://www.redalyc.org/html/714/71411240017/.
Morris, H., & Bertram, D. (2013). Therapist utilization of online social support for parents of premature infants. Contemporary Family Therapy, 35(3), 583-598. doi: 10.1007/s10591-013-9239-5.
Mustafa, H.R., Short, M., & Fan, S. (2015). Social support exchanges in Facebook social support group. Procedia-Social and Behavioral Sciences, 185, 346-351. doi: 10.1016/j.sbspro.2015.03.449.
Niela-Vilén, H., Axelin, A., Salanterä, S., & Melender, H. L. (2014). Internet-based peer support for parents: A systematic integrative review. International Journal of Nursing Studies, 51(11), 1524-1537. doi: 10.1016/j.ijnurstu.2014.06.009.
Nolan, S., Hendricks, J., & Towell, A. (2015). Social networking sites (SNS): exploring their uses and associated value for adolescent mothers in Western Australia in terms of social support provision and building social capital. Midwifery, 31(9), 912-919. doi: 10.1016/j.midw.2015.05.002.
Oprescu, F., Campo, S., Lowe, J., Andsager, J., & Morcuende, J. (2015). Online information exchanges for parents of children with a rare health condition: Key findings from an online support community. Journal of Medical Internet Research, 15(1), e16. doi:10.2196/jmir.2423.
Park, E., Kim, H., & Steinhoff, A. (2016). Health-related internet use by informal caregivers of children and adolescents: an integrative literature review. Journal of Medical Internet Research, 18(3), e57. doi: 10.2196/jmir.4124.
Parry, D.C., Glover, T.D., & Mulcahy, C.M. (2013). From" stroller-stalker" to" momancer" courting friends through a social networking site for mothers. Journal of Leisure Research, 45(1), 23-46. doi: 10.18666/jlr-2013-v45-i1-2941.
Pedersen, S., & Lupton, D. (in press). ‘What are you feeling right now? ’communities of maternal feeling on Mumsnet. Emotion, Space and Society. doi: 10.1016/j.emospa.2016.05.001.
Perrone, M.E., Carmody, D., Philipson, L.H., & Greeley, S.A.W. (2015). An online monogenic diabetes discussion group: supporting families and fueling new research. Translational Research, 166(5), 425-431. doi: 10.1016/j.trsl.2015.06.013.
Porter, N., & Ispa, J.M. (2013). Mothers’ online message board questions about parenting infants and toddlers. Journal of Advanced Nursing, 69(3), 559-568. doi: 10.1111/j.1365-2648.2012.06030.x.
Ramos, M.F.H., Fernandez, A.P.O., Pontes, F.A.R., & Silva, S.S.C. (2016). Caracterização das pesquisas sobre eficácia coletiva docente na perspectiva da teoria social cognitiva. Psicologia: Teoria e Pesquisa, 32(1), 91-99. doi: 10.1590/0102-37722016012227091099.
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Roffeei, S.H.M., Abdullah, N., & Basar, S.K.R. (2015). Seeking social support on Facebook for children with Autism Spectrum Disorders (ASDs). International Journal of Medical Informatics, 84(5), 375-385. doi: 10.1016/j.ijmedinf.2015.01.015.
Salzmann‐Erikson, M., & Eriksson, H. (2013). Fathers sharing about early parental support in health‐care‐online discussions on an Internet forum. Health & Social Care in the Community, 21(4), 381-390. doi: 10.1111/hsc.12028.
Stewart, M., Letourneau, N., Masuda, N.R., Anderson, S., & McGhan, S. (2011). Online solutions to support needs and preferences of parents of children with asthma and allergies. Journal of Family Nursing, 17(3), 357-379. doi: 10.1177/1074840711415416.
Sullivan, C.F. (2008). Cybersupport: Empowering asthma caregivers. Pediatric Nursing, 34(3), 217-224. Recuperado de https://www.ncbi.nlm.nih.gov/pubmed/18649811.
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Binford Hopf, R.B., Grange, D.L., Moessner, M., & Bauer, S. (2013). Internet‐based chat support groups for parents in family‐based treatment for adolescent eating disorders: A pilot study. European Eating Disorders Review, 21(3), 215-223. doi: 10.1002/erv.2196.
Brady, E., & Guerin, S. (2010). “Not the romantic, all happy, coochy coo experience”: A qualitative analysis of interactions on an Irish parenting web site. Family Relations, 59(1), 14-27. doi: 10.1111/j.1741-3729.2009.00582.x.
Bragadóttir, H. (2008). Computer‐mediated support group intervention for parents. Journal of Nursing Scholarship, 40(1), 32-38. doi: 10.1111/j.1547-5069.2007.00203.x.
Cacioppo, C.N., Conway, L.J., Mehta, D., Krantz, I.D., & Noon, S.E. (2016). Attitudes about the use of internet support groups and the impact among parents of children with Cornelia de Lange Syndrome. American Journal of Medical Genetics Part C: Seminars in Medical Genetics, 172(2), 229-236. doi: 10.1002/ajmg.c.31504.
Cantwell, J., Muldoon, O.T., & Gallagher, S. (2014). Social support and mastery influence the association between stress and poor physical health in parents caring for children with developmental disabilities. Research in Developmental Disabilities, 35(9), 2215-2223. doi: 10.1016/j.ridd.2014.05.012.
Clarke, J.N., & Van Ameron, G. (2015). Parents Whose Children have Oppositional Defiant Disorder Talk to One Another on the Internet. Child and Adolescent Social Work Journal, 32(4), 341-350. doi: 10.1007/s10560-015-0377-5.
Clauset, A., Newman, M.E.J., & Moore, C. (2004). Finding community structure in very large networks. Physical Review, 70(6), 1-6. doi: 10.1103/PhysRevE.70.066111.
Clifford, T., & Minnes, P. (2013). Logging on: Evaluating an online support group for parents of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 43(7), 1662-1675. doi: 10.1007/s10803-012-1714-6.
Coulson, N.S., & Greenwood, N. (2012). Families affected by childhood cancer: An analysis of the provision of social support within online support groups. Child: Care, Health and Development, 38(6), 870-877. doi:10.1111/j.1365-2214.2011.01316.x.
Craig, E.A., & Johnson, A.J. (2011). Role strain and online social support for childless stepmothers. Journal of Social and Personal Relationships, 28(6), 868-887. doi: 10.1177/0265407510393055.
Diallo, S.Y., Lynch, C.J., Gore, R., & Padilla, J.J. (2016). Identifying key papers within a journal via network centrality measures. Scientometrics, 107(3),1005–1020. doi: 10.1007/s11192-016-1891-8.
Epifanio, M. S., Genna, V., De Luca, C., Roccella, M., & La Grutta, S. (2015). Paternal and maternal transition to parenthood: the risk of postpartum depression and parenting stress. Pediatric reports, 7(2), 38-44. doi: 10.4081/pr.2015.5872.
Eriksson, H., & Salzmann‐Erikson, M. (2013). Supporting a caring fatherhood in cyberspace–an analysis of communication about caring within an online forum for fathers. Scandinavian Journal of Caring Sciences, 27(1), 63-69. doi: 10.1111/j.1471-6712.2012.01001.x.
Evans, M., Donelle, L., & Hume-Loveland, L. (2012). Social support and online postpartum depression discussion groups: A content analysis. Patient Education and Counseling, 87(3), 405-410. doi: 10.1016/j.pec.2011.09.011.
Fletcher, R., & StGeorge, J. (2011). Heading into fatherhood—nervously: Support for fathering from online dads. Qualitative Health Research, 21(8), 1101-1114. doi: 10.1177/1049732311404903.
Gabbert, T.I., Metze, B., Bührer, C., & Garten, L. (2013). Use of social networking sites by parents of very low birth weight infants: experiences and the potential of a dedicated site. European Journal of Pediatrics, 172(12), 1671-1677. doi: 10.1007/s00431-013-2067-7.
Gallagher, S., & Whiteley, J. (2012). Social support is associated with blood pressure responses in parents caring for children with developmental disabilities. Research in Developmental Disabilities, 33(6), 2099-2105. doi: 10.1016/j.ridd.2012.06.007.
Glenn, A.D. (2015). Using online health communication to manage chronic sorrow: Mothers of children with rare diseases speak. Journal of Pediatric Nursing, 30(1), 17-24. doi: 10.1016/j.pedn.2014.09.013.
Hall, W., & Irvine, V. (2009). E‐communication among mothers of infants and toddlers in a community‐based cohort: A content analysis. Journal of Advanced Nursing, 65(1), 175-183. doi: 10.1111/j.1365-2648.2008.04856.x.
Hanneman, R., & Riddle, M. (2005). Introduction to social network methods. Riverside, CA, EUA: University of California.
Hudson, D.B., Campbell-Grossman, C., & Hertzog, M. (2012). Effects of an internet intervention on mothers’ psychological, parenting, and health care utilization outcomes. Issues in Comprehensive Pediatric Nursing, 35(3-4), 176-193. doi: 10.3109/01460862.2012.734211.
Jacobs, R., Boyd, L., Brennan, K., Sinha, C.K., & Giuliani, S. (2016). The importance of social media for patients and families affected by congenital anomalies: A Facebook cross-sectional analysis and user survey. Journal of Pediatric Surgery, 51(11), 1766-1771. doi: 10.1016/j.jpedsurg.2016.07.008.
Johnson, S.A. (2015). ‘Intimate mothering publics’: comparing face-to-face support groups and Internet use for women seeking information and advice in the transition to first-time motherhood. Culture, Health & Sexuality, 17(2), 237-251. doi: 10.1080/13691058.2014.968807.
Kirk, S., & Milnes, L. (2016). An exploration of how young people and parents use online support in the context of living with cystic fibrosis. Health Expectations, 19(2), 309-321. doi: 10.1111/hex.12352.
Laniado, D., Volkovich, Y., Kappler, K., & Kaltenbrunner, A. (2016). Gender homophily in online dyadic and triadic relationships. EPJ Data Science, 5(19), 1-23. doi: 10.1140/epjds/s13688-016-0080-6.
Lee, R.L., & Kvasny, L. (2014). Understanding the role of social media in online health: A global perspective on online social support. First Monday, 19(1). doi: 10.5210/fm.v19i1.4048.
Lewis, T.G. (2009). Network science: Theory and practice. Hoboken, NJ, EUA: John Wiley & Sons, Inc.
Lin, T.C., Hsu, J.S.C., Cheng, H.L., & Chiu, C.M. (2015). Exploring the relationships between receiving and offering online social support: A dual social support model. Information & Management, 52(3), 371-383. doi: 10.1016/j.im.2015.01.003.
Lovell, B., Moss, M., & Wetherell, M.A. (2012). With a little help from my friends: Psychological, endocrine and health corollaries of social support in parental caregivers of children with autism or ADHD. Research in Developmental Disabilities, 33(2), 682-687. doi: 10.1016/j.ridd.2011.11.014.
Martin, S., Roderick, M.C., Lockridge, R., Toledo-Tamula, M.A., Baldwin, A., Knight, P., & Wolters, P. (2016). Feasibility and preliminary efficacy of an internet support group for parents of a child with neurofibromatosis type 1: a pilot study. Journal of genetic counseling, 26(3), 576-585. doi: 10.1007/s10897-016-0031-1.
Martin, S., Wolters, P.L., Baldwin, A., Roderick, M.C., Toledo-Tamula, M.A., Gillespie, A., & Widemann, B. (2014). Attitudes about internet support groups among adolescents and young adults with neurofibromatosis type 1 and their parents. Journal of Genetic Counseling, 3(26), 576-585. doi: 10.1007/s10897-016-0031-1.
Mendes, K.D.S., Silveira R.C.C.P., & Galvão, C.M. (2008). Revisão integrativa: método de pesquisa para a incorporação de evidências na saúde e na enfermagem. Texto Contexto Enfermagem, 17(4), 758-64. Recuperado de http://www.redalyc.org/html/714/71411240017/.
Morris, H., & Bertram, D. (2013). Therapist utilization of online social support for parents of premature infants. Contemporary Family Therapy, 35(3), 583-598. doi: 10.1007/s10591-013-9239-5.
Mustafa, H.R., Short, M., & Fan, S. (2015). Social support exchanges in Facebook social support group. Procedia-Social and Behavioral Sciences, 185, 346-351. doi: 10.1016/j.sbspro.2015.03.449.
Niela-Vilén, H., Axelin, A., Salanterä, S., & Melender, H. L. (2014). Internet-based peer support for parents: A systematic integrative review. International Journal of Nursing Studies, 51(11), 1524-1537. doi: 10.1016/j.ijnurstu.2014.06.009.
Nolan, S., Hendricks, J., & Towell, A. (2015). Social networking sites (SNS): exploring their uses and associated value for adolescent mothers in Western Australia in terms of social support provision and building social capital. Midwifery, 31(9), 912-919. doi: 10.1016/j.midw.2015.05.002.
Oprescu, F., Campo, S., Lowe, J., Andsager, J., & Morcuende, J. (2015). Online information exchanges for parents of children with a rare health condition: Key findings from an online support community. Journal of Medical Internet Research, 15(1), e16. doi:10.2196/jmir.2423.
Park, E., Kim, H., & Steinhoff, A. (2016). Health-related internet use by informal caregivers of children and adolescents: an integrative literature review. Journal of Medical Internet Research, 18(3), e57. doi: 10.2196/jmir.4124.
Parry, D.C., Glover, T.D., & Mulcahy, C.M. (2013). From" stroller-stalker" to" momancer" courting friends through a social networking site for mothers. Journal of Leisure Research, 45(1), 23-46. doi: 10.18666/jlr-2013-v45-i1-2941.
Pedersen, S., & Lupton, D. (in press). ‘What are you feeling right now? ’communities of maternal feeling on Mumsnet. Emotion, Space and Society. doi: 10.1016/j.emospa.2016.05.001.
Perrone, M.E., Carmody, D., Philipson, L.H., & Greeley, S.A.W. (2015). An online monogenic diabetes discussion group: supporting families and fueling new research. Translational Research, 166(5), 425-431. doi: 10.1016/j.trsl.2015.06.013.
Porter, N., & Ispa, J.M. (2013). Mothers’ online message board questions about parenting infants and toddlers. Journal of Advanced Nursing, 69(3), 559-568. doi: 10.1111/j.1365-2648.2012.06030.x.
Ramos, M.F.H., Fernandez, A.P.O., Pontes, F.A.R., & Silva, S.S.C. (2016). Caracterização das pesquisas sobre eficácia coletiva docente na perspectiva da teoria social cognitiva. Psicologia: Teoria e Pesquisa, 32(1), 91-99. doi: 10.1590/0102-37722016012227091099.
Reinke, J.S., & Solheim, C.A. (2015). Online social support experiences of mothers of children with autism spectrum disorder. Journal of Child and Family Studies, 24, 2364-2373. doi: 10.1007/s10826-014-0039-9.
Roffeei, S.H.M., Abdullah, N., & Basar, S.K.R. (2015). Seeking social support on Facebook for children with Autism Spectrum Disorders (ASDs). International Journal of Medical Informatics, 84(5), 375-385. doi: 10.1016/j.ijmedinf.2015.01.015.
Salzmann‐Erikson, M., & Eriksson, H. (2013). Fathers sharing about early parental support in health‐care‐online discussions on an Internet forum. Health & Social Care in the Community, 21(4), 381-390. doi: 10.1111/hsc.12028.
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Publicado
2020-05-12
Cómo citar
Dias, T. da S. ., Pontes, F. A. R. ., de Almeida, H. C. ., Rosa, T. dos S. ., Ramos, M. F. H. ., & Silva, S. S. da C. . (2020). Apoio social online entre cuidadores de crianças e jovens: revisão integrativa em rede da literatura. Ciencias Psicológicas, 14(1), e-2160. https://doi.org/10.22235/cp.v14i1.2160
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ARTÍCULOS ORIGINALES
