Modelo preditivo do crescimento pós-traumático em pais de pacientes com cardiopatias congênitas

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DOI:

https://doi.org/10.22235/cp.v19i2.4530

Palavras-chave:

Crescimento Pós-Traumático, Apoio Social, Enfrentamento, Cardiopatias Congênitas, Pais

Resumo

O diagnóstico de uma cardiopatia congênita na infância costuma ser uma situação complexa tanto para os pacientes quanto para seus pais, podendo se tornar uma experiência traumática. O objetivo deste estudo foi identificar os preditores do crescimento pós-traumático a partir das estratégias de enfrentamento do estresse, dos sintomas de estresse pós-traumático e do apoio social em pais de pacientes pediátricos com algum diagnóstico de cardiopatia congênita. Trata-se de um estudo transversal, com amostragem não probabilística, que contou com a participação de 132 mães e pais do México. Para a avaliação, foram utilizados o Inventário de Crescimento Pós-Traumático, a Escala de Impacto do Evento, a Escala Multidimensional de Apoio Social Percebido e o Questionário de Enfrentamento do Estresse. Os resultados mostraram que os pais apresentam um alto nível de crescimento pós-traumático, explicado em 33,6 % pelo apoio social de amigos, pela influência indireta da expressão emocional aberta, pela autofocalização negativa, pela evitação, pelo apoio familiar, pela religiosidade e pela busca de apoio social por meio da reavaliação positiva. Em conclusão, um manejo adequado das estratégias de enfrentamento desadaptativas em pais de crianças com cardiopatias congênitas, aliado à presença de redes de apoio social, está associado a um maior desenvolvimento do crescimento pós-traumático.

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Referências

Aftyka, A., Rozalska, I., & Milanowska, J. (2020). Is post-traumatic growth possible in the parents of former patients of neonatal intensive care units? Annals of Agricultural and Environmental Medicine, 27(1), 106-112. https://doi.org/10.26444/aaem/105800

Arbuckle, J. L. (2013). IBM SPSS Amos 22: User's guide. Amos Development Corporation.

Armstrong, D., Shakespeare‐finch, J., & Shochet, I. (2014). Predicting post‐traumatic growth and post‐traumatic stress in firefighters. Australian Journal of Psychology, 66(1), 38-46. https://doi.org/10.1111/ajpy.12032

Bae, K. R., So, W. Y., & Jang, S. (2023). Effects of a post-traumatic growth program on young Korean breast cancer survivors. Healthcare, 11(1), 140. https://doi.org/10.3390/healthcare11010140

Báguena, M. J., Villarroya, E., Beleña, A., Díaz, A., Roldán, C., & Reig, R. (2001). Propiedades psicométricas de la versión española de la Escala Revisada de Impacto del Estresor (EIE-R). Análisis y Modificación de Conducta, 27(114), 581-604.

Biber, S., Andonian, C., Beckmann, J., Ewert, P., Freilinger, S., Nagdyman, N., Kaemmerer, H., Oberhoffer, R., Pieper, L., & Neidenbach, R. C. (2019). Current research status on the psychological situation of parents of children with congenital heart disease. Cardiovascular Diagnosis and Therapy, 9(2), 369-376. https://doi.org/10.21037/cdt.2019.07.07

Bishop, M. N., Gise, J. E., Donati, M. R., Shneider, C. E., Aylward, B. S., & Cohen, L. L. (2019). Parenting stress, sleep, and psychological adjustment in parents of infants and toddlers with congenital heart disease. Journal of Pediatric Psychology, 44(8), 980-987. https://doi.org/10.1093/jpepsy/jsz026

Byrne, B. M. (2016). Structural equation modeling with AMOS: Basic concepts, applications, and programming (3a ed.). Routledge.

Cárdenas Castro, M., Arnoso Martínez, M., & Faúndez Abarca, X. (2019). Deliberate rumination and positive reappraisal as serial mediators between life impact and posttraumatic growth in victims of state terrorism in Chile (1973-1990). Journal of Interpersonal Violence, 34(3), 545-561. https://doi.org/10.1177/0886260516642294

Carmassi, C., Corsi, M., Bertelloni, C. A., Pedrinelli, V., Massimetti, G., Peroni, D. G., Bonuccelli, A., Orsini, A., & Dell'Osso, L. (2019). Post-traumatic stress and major depressive disorders in parent caregivers of children with a chronic disorder. Psychiatry Research, 279, 195-200. https://doi.org/10.1016/j.psychres.2019.02.062

Carmassi, C., Dell’Oste, V., Foghi, C., Bertelloni, C. A., Conti, E., Calderoni, S., Battini, R., & Dell’Osso, L. (2021). Post-traumatic stress reactions in caregivers of children and adolescents/young adults with severe diseases: A systematic review of risk and protective factors. International Journal of Environmental Research and Public Health, 18(1), e189. https://doi.org/10.3390/ijerph18010189

Casey, T., Matthews, C., Lavelle, M., Kenny, D., & Hevey, D. (2024). Exploring relationships between parental stress, coping, and psychological outcomes for parents of infants with CHD. Cardiology in the Young, 34(10), 2189-2200. https://doi.org/10.1017/S104795112402568X

Cohn, L. N., Pechlivanoglou, P., Lee, Y., Mahant, S., Orkin, J., Marson, A., & Cohen, E. (2020). Health outcomes of parents of children with chronic illness: a systematic review and meta-analysis. The Journal of Pediatrics, 218, 166-177. https://doi.org/10.1016/j.jpeds.2019.10.068

Davey, B. T., Lee, J. H., Manchester, A., Gunnlaugsson, S., Ohannessian, C. M., Rodrigues, R., & Popp, J. (2023). Maternal reaction and psychological coping after diagnosis of congenital heart disease. Maternal and Child Health Journal, 27(4), 671-679. https://doi.org/10.1007/s10995-023-03599-3

Dellborg, M., Giang, K. W., Eriksson, P., Liden, H., Fedchenko, M., Ahnfelt, A., Rosengren, A., & Mandalenakis, Z. (2023). Adults with congenital heart disease: Trends in event-free survival past middle age. Circulation, 147(12), 930-938. https://doi.org/10.1161/CIRCULATIONAHA.122.060834

Demianczyk, A. C., Driscoll, C. F., Karpyn, A., Shillingford, A., Kazak, A. E., & Sood, E. (2022). Coping strategies used by mothers and fathers following diagnosis of congenital heart disease. Child: Care, Health and Development, 48(1), 129-138. https://doi.org/10.1111/cch.12913

Dirik, G., & Göcek-Yorulmaz, E. (2018). Positive sides of the disease: Posttraumatic growth in adults with type 2 diabetes. Behavioral Medicine, 44(1), 1-10. https://doi.org/10.1080/08964289.2016.1173635

Domínguez-Reyes, M. Y., & Torres-Rodríguez, I. L. (2021). Experiencias materno-paternas en el afrontamiento a la cardiopatía congénita infantil. Gaceta Médica Espirituana, 23(3), 50-61.

Döveling, K. (2014). Emotion regulation in bereavement: Searching for and finding emotional support in social network sites. New Review of Hypermedia and Multimedia, 21(1-2), 106-122. https://doi.org/10.1080/13614568.2014.983558

Ebrahim, M. T., & Alothman, A. A. (2021). Resilience and social support as predictors of post-traumatic growth in mothers of children with autism spectrum disorder in Saudi Arabia. Research in Developmental Disabilities, 113, e103943. https://doi.org/10.1016/j.ridd.2021.103943

Eraslan, P., & Tak, S. (2021). Coping strategies and relation with depression levels of mothers of children with congenital heart diseases. Turkish Journal of Clinics and Laboratory, 12(4), 391-397. https://doi.org/10.18663/tjcl.973367

Fletcher, S., Mitchell, S., Curran, D., Armour, C., & Hanna, D. (2023). Empirically derived patterns of posttraumatic stress and growth: A systematic review. Trauma, Violence, & Abuse, 24(5), 3132-3150. https://doi.org/10.1177/15248380221129580

García, F. E., Rivera, C., & Garabito, S. R. (2022). Posttraumatic growth in Latin America: What is it, what is known and what is its usefulness? En C. H. García-Cadena (Ed.), Research on Hispanic Psychology (Vol. 2, pp. 11-16). Nova.

Hakulinen, C., Pulkki-Råback, L., Jokela, M., Ferrie, J.E. Aalto, A. Kivimäki, M., Vahtera, J., & Elovainio, M. (2016). Structural and functional aspects of social support as predictors of mental and physical health trajectories: Whitehall II cohort study. Journal of Epidemiology and Community Health, 70(7), 710-715. https://doi.org/10.1136/jech-2015-206165

Hasson-Ohayon, I., Tuval-Mashiach, R., Goldzweig, G., Levi, R., Pizem, N., & Kaufman, B. (2016). The need for friendships and information: Dimensions of social support and posttraumatic growth among women with breast cancer. Palliative and Supportive Care, 14(4), 387-392. https://doi.org/10.1017/S1478951515001042

He, M., Shi, B., Zheng, Q., Gong, C., & Huang, H. (2024). Posttraumatic growth and its correlates among parents of children with cleft lip and/or palate. The Cleft Palate Craniofacial Journal, 61(1), 110-118. https://doi.org/10.1177/10556656221118425

Henson, C., Truchot, D., & Canevello, A. (2021). What promotes post traumatic growth? A systematic review. European Journal of Trauma & Dissociation, 5(4), e100195. https://doi.org/10.1016/j.ejtd.2020.100195

Horowitz, M., Wilner, N., & Alvarez, W. (1979). Impact of Event Scale: A measure of subjective stress. Biopsychosocial Science and Medicine, 41(3), 209-218. https://doi.org/10.1097/00006842-197905000-00004

Kline, R. B. (2023). Principles and practice of structural equation modeling. Guilford Publications.

Landeta, O., & Calvete, E. (2002). Adaptación y validación de la escala multidimensional de apoyo social percibido. Ansiedad y Estrés, 8(2-3), 173-182.

Liu, Y., Chen, S., Zühlke, L., Black, G. C., Choy, M. K., Li, N., & Keavney, B. D. (2019). Global birth prevalence of congenital heart defects 1970–2017: Updated systematic review and meta-analysis of 260 studies. International Journal of Epidemiology, 48(2), 455-463. https://doi.org/10.1093/ije/dyz009

Lumsden, M. R., Smith, D. M., & Wittkowski, A. (2019). Coping in parents of children with congenital heart disease: A systematic review and meta-synthesis. Journal of Child and Family Studies, 28, 1736-1753. https://doi.org/10.1007/s10826-019-01406-8

Mandalenakis, Z., Giang, K. W., Eriksson, P., Liden, H., Synnergren, M., Wåhlander, H., Fedchenko, M., Rosengren, A., & Dellborg, M. (2020). Survival in children with congenital heart disease: have we reached a peak at 97%? Journal of the American Heart Association, 9(22), e017704. https://doi.org/10.1161/JAHA.120.017704

McWhorter, L. G., Christofferson, J., Neely, T., Hildenbrand, A. K., Alderfer, M. A., Randall, A., Kazak, A. E., & Sood, E. (2022). Parental post-traumatic stress, overprotective parenting, and emotional and behavioral problems for children with critical congenital heart disease. Cardiology in the Young, 32(5), 738-745. https://doi.org/10.1017/S1047951121002912

Mulaik, S. A., James, L. R., Van Alstine, J., Bennett, N., Lind, S., & Stilwell, C. D. (1989). Evaluation of goodness-of-fit indices for structural equation models. Psychological Bulletin, 105, 430-445. https://doi.org/10.1037/0033-2909.105.3.43

Nayeri, N. D., Roddehghan, Z., Mahmoodi, F., & Mahmoodi, P. (2021). Being parent of a child with congenital heart disease, what does it mean? A qualitative research. BMC Psychology, 9, 1-8. https://doi.org/10.1186/s40359-021-00539-0

Negri-Schwartz, O., Lavidor, M., Shilton, T., Gothelf, D., & Hasson-Ohayon, I. (2024). Post-traumatic growth correlates among parents of children with chronic illnesses: A systematic review and meta-analysis. Clinical Psychology Review, 109, 102409. https://doi.org/10.1016/j.cpr.2024.102409

Nouzari, R., Najafi, S. S., & Momennasab, M. (2019). Post-traumatic growth among family caregivers of cancer patients and its association with social support and hope. International Journal of Community Based Nursing and Midwifery, 7(4), 319-328. https://doi.org/10.30476/IJCBNM.2019.73959.0

O’Toole, S., Suarez, C., Adair, P., McAleese, A., Willis, S., & McCormack, D. (2022). A systematic review of the factors associated with post-traumatic growth in parents following admission of their child to the intensive care unit. Journal of Clinical Psychology in Medical Settings, 29(3), 509-537. https://doi.org/10.1007/s10880-022-09880-x

Oden, T. N., & Cam, R. (2021). The relationship between hopelessness and perceived social support levels of parents with children with congenital heart disease. Medical Science and Discovery, 8(11), 655-661. https://doi.org/10.36472/msd.v8i11.625

Palmer, E., Murphy, D., & Spencer-Harper, L. (2017). Experience of post-traumatic growth in UK veterans with PTSD: A qualitative study. BMJ Military Health, 163(3), 171-176. https://doi.org/10.1136/jramc-2015-000607

Peters, J., Bellet, B. W., Jones, P. J., Wu, G. W., Wang, L., & McNally, R. J. (2021). Posttraumatic stress or posttraumatic growth? Using network analysis to explore the relationships between coping styles and trauma outcomes. Journal of Anxiety Disorders, 78, 102359. https://doi.org/10.1016/j.janxdis.2021.102359

Quezada-Berumen, L., & de la Garza-Samaniego, A. (2024). Rumiación, gratitud y afecto positivo y negativo como predictores del crecimiento postraumático en deudos por COVID-19. Ansiedad y Estrés, 30(1), 49 -55. https://doi.org/10.5093/anyes2024a7

Quezada-Berumen, L., & González-Ramírez, M. T. (2020a). Propiedades psicométricas del inventario de crecimiento postraumático en población mexicana. Acción Psicológica, 17(1), 13-28. https://doi.org/10.5944/17.1.25736

Quezada-Berumen, L., & González-Ramírez, M. T. (2020b). Predictores del crecimiento postraumático en hombres y mujeres. Ansiedad y Estrés, 26(2-3), 98-106. https://doi.org/10.1016/j.anyes.2020.05.002

Roberts, S. D., Kazazian, V., Ford, M. K., Marini, D., Miller, S. P., Chau, V., Seed, M., Ly, L.G., Williams, T. S., & Sananes, R. (2021). The association between parent stress, coping and mental health, and neurodevelopmental outcomes of infants with congenital heart disease. The Clinical Neuropsychologist, 35(5), 948-972. https://doi.org/10.1080/13854046.2021.1896037

Rodríguez-Ayán, N. M., & Ruiz-Díaz, M. Á. (2008). Atenuación de la asimetría y de la curtosis de las puntuaciones observadas mediante transformaciones de variables: Incidencia sobre la estructura factorial. Psicológica, 29(2), 205-277.

Saltzman, L. Y., Pat-Horenczyk, R., Lombe, M., Weltman, A., Ziv, Y., McNamara, T., Takeuchi, D., & Brom, D. (2018). Post-combat adaptation: Improving social support and reaching constructive growth. Anxiety, Stress, & Coping, 31(4), 418-430. https://doi.org/10.1080/10615806.2018.1454740

Sandín, B., & Chorot, P. (2003). Cuestionario de Afrontamiento del Estrés (CAE): Desarrollo y validación preliminar. Revista de Psicopatología y Psicología Clínica, 8(1), 39-53. https://doi.org/10.5944/rppc.vol.8.num.1.2003.3941

Secretaría de Salud. (2022, 14 de febrero). Al año nacen en México entre 12 mil y 16 mil infantes con afecciones cardiacas. Gobierno de México. https://acortar.link/l7r2de

Sociedad Mexicana de Psicología. (2007). Código ético del Psicólogo. Trillas.

Stephenson, E., & DeLongis, A. (2020). Coping strategies. En K. Sweeny, M. L. Robbins & L. M. Cohen (Eds.), The Wiley Encyclopedia of Health Psychology, (pp. 55-60). https://doi.org/10.1002/9781119057840.ch50

Swerdlow, B. A., Sandel, D. B., & Johnson, S. L. (2023). Shame on me for needing you: A multistudy examination of links between receiving interpersonal emotion regulation and experiencing shame. Emotion, 23(3), 737-752. https://doi.org/10.1037/emo0001109

Tedeschi, R. G., & Calhoun, L. G. (1996). The Posttraumatic Growth Inventory: Measuring the positive legacy of trauma. Journal of Traumatic Stress, 9, 455-471. https://doi.org/10.1007/BF02103658

Tedeschi, R. G., & Calhoun, L. G. (2004). Posttraumatic growth: Conceptual foundations and empirical evidence. Psychological Inquiry, 15(1), 1-18. https://doi.org/10.1207/s15327965pli1501_01

Tedeschi, R. G., Shakespeare-Finch, J., Taku, K., & Calhoun, L. G. (2018). Posttraumatic Growth: Theory, Research, and Applications. Routledge. https://doi.org/10.4324/9781315527451

Toledo, G., Ochoa, C. Y., & Farias, A. J. (2021). Religion and spirituality: Their role in the psychosocial adjustment to breast cancer and subsequent symptom management of adjuvant endocrine therapy. Support Care in Cancer, 29, 3017-3024. https://doi.org/10.1007/s00520-020-05722-4

Weiss, D. S., & Marmar, C. R. (1997). The Impact of Event Scale-Revised. En J. P. Wilson & T. M. Keane (Eds.), Assessing Psychological Trauma and PTSD (pp. 399-411). The Guilford Press.

Xingyanan, W., Yuanhong, L., Yang, L., & Zhitian, X. (2025). A cross-sectional study on posttraumatic growth and influencing factors among parents of premature infants. BMC Pregnancy and Childbirth, 25(1), 26. https://doi.org/10.1186/s12884-025-07137-7

Yagiela, L. M., Edgar, C. M., Harper, F. W., & Meert, K. L. (2022). Parent posttraumatic growth after a child's critical illness. Frontiers in Pediatrics, 10, e989053. https://doi.org/10.3389/fped.2022.989053

Zacher, H. & Rudolph, C. W. (2021). Individual differences and changes in subjective wellbeing during the early stages of the COVID-19 pandemic. American Psychologist, 76(1). https://doi.org/10.1037/amp0000702

Zimet, G. D., Dahlem, N. W., Zimet, S. G., & Farley, G. K. (1988). The Multidimensional Scale of Perceived Social Support. Journal of Personality Assessment, 52(1), 30-41. https://doi.org/10.1207/s15327752jpa5201_2

Zimmerman, M. S., Smith, A. G. C., Sable, C. A., Echko, M. M., Wilner, L. B., Olsen, H. E., Atalay, H. T., Awasthi, A., Bhutta, Z. A., Boucher, J. L., Castro, F., Cortesi, P. A., Dubey, M., Fischer, F., Hamidi, S., Hay, S. I., Hoang, C. L., Hugo-Hamman, C. T., Jenkins, K. J., ... & Kassebaum, N. J. (2020). Global, regional, and national burden of congenital heart disease, 1990–2017: A systematic analysis for the Global Burden of Disease Study 2017. The Lancet Child & Adolescent Health, 4(3), 185-200. https://doi.org/10.1016/S2352-4642(19)30402-X

Publicado

2025-11-20

Como Citar

de la Garza Samaniego, A. L., & Quezada Berumen, L. (2025). Modelo preditivo do crescimento pós-traumático em pais de pacientes com cardiopatias congênitas. Ciencias Psicológicas, 19(2), e-4530. https://doi.org/10.22235/cp.v19i2.4530

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