“It pulls you down, but you need it to access the benefits”: the double-edged sword of mental illness diagnosis

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DOI:

https://doi.org/10.22235/cp.v16i1.2220

Keywords:

mental health, Spain, mental diseases, psychological diagnosis, psychiatric diagnosis, social representation, stigmatization

Abstract

Mental ill-health is rife in all corners of the world. Mental illness diagnosis simultaneously names the problem and labels a person. Taking a social representations perspective, this phenomenological study explores how 12 people living with a mental disorder in Barcelona, Spain, experienced their diagnosis. They experienced having to process what this “diagnosis for life” meant for their sense of self. Immediate encounters of stereotyping and changes in their social relations, reinforced their experience of being “stigmatized for life” and seen as “mentally ill all the time”. Participants did however also note that the diagnosis helped them make sense of the past and the future, including enabling access to specific benefits, which supported their recovery and helped them make ends meet – highlighting the ambivalence of mental illness diagnosis. This study highlights the need to consider the social context and patients’ narrated experiences of diagnosis centre stage.

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References

Aspers, P. (2004). Empirical Phenomenology: an approach for qualitative research. Papers in Social Research Methods Qualitative Series, 9, 1-15.

Ayestarán, S. & Páez, D. (1986). Representación social de la enfermedad mental. Revista de La Asociación Española de Neuropsiquiatría, 6(016), 95-128.

Barbosa, D. J., Tosoli, A. M. G., Oliveira Fleury, M. L., Dib, R. V., Oliveira Fleury, L. F., & Silva, A. N. (2018). Social Representations of Mental Disorders. Journal of Nursing, 12(6), 1813-1816. https://doi.org/10.5205/1981-8963

Bueno Abad, J. R. & Mestre Luján, F. J. (2005). Prensa y representaciones sociales de la enfermedad mental Press and asocial representations of mental. Intervención Psicosocial, 14(2), 131-159.

Cabruja, T. (1988). La imagen popular de la locura. In T. Ibáñez (Ed.), Ideologías de la vida cotidiana (pp. 183-204). Sendai Ediciones.

Castillejos Anguiano, M. C., Bordallo Aragón, A., Aguilera Fernández, D., & Moreno Küstner, B. (2019). Perceptions about mental illness among general practitioners. International Journal of Mental Health Systems, 13(1), 1-5. https://doi.org/10.1186/s13033-019-0284-9

Choudhry, F. R., Mani, V., Ming, L. C., & Khan, T. M. (2016). Beliefs and perception about mental health issues: a meta-synthesis. Neuropsychiatric Disease and Treatment, 12, 2807-2818. https://doi.org/10.2147/NDT.S111543

Conner, K. O., Lee, B., Mayers, V., Robinson, D., Charles, F., Reynolds, I., Albert, S., & Brown, C. (2011). Attitudes and beliefs abour mental health among African American older adults suffering from depression. Journal of Aging Studies, 24(4), 266-277. https://doi.org/10.1016/j.jaging.2010.05.007

Corrigan, P. W. (2007). How Clinical Diagnosis Might Exacerbate the Stigma of Mental Illness. Social Work, 52(1), 31-39. https://doi.org/10.1093/sw/52.1.31

Corrigan, P. W. & Watson, A. C. (2002). The Paradox of Self‐Stigma and Mental Illness. Clinical Psychology Science and Practice, 9(1), 35-53. https://doi.org/10.1093/clipsy/9.1.35

Corrigan, P. W., Druss, B. G., & Perlick, D. A. (2014). The Impact of Mental Illness Stigma on Seeking and Participating in Mental Health Care. Psychological Science in the Public Interest, 15(2), 37-70. https://doi.org/10.1177/1529100614531398

Dixit, S. (2005). Meaning and Explanations of Mental Illness: A Social Representations Approach. Psychology & Developing Societies, 17(1), 1-18. https://doi.org/10.1177/097133360501700101

Epstein, R. M. (2006). Making communication research matter: What do patients notice, what do patients want, and what do patients need? Patient Education and Counseling, 60(3), 272-278. https://doi.org/10.1016/j.pec.2005.11.003

Evans-Lacko, S., Brohan, E., Mojtabai, R., & Thornicroft, G. (2012). Association between public views of mental illness and self-stigma among individuals with mental illness in 14 European countries. Psychological Medicine, 42, 1741-1752.

Flick, U. (2009). An Introduction to Qualitative Research. Sage Publications.

Foster, J. L. H. (2001). Unification and differentiation: a study of the social representations of mental illness. Papers on Social Representations, 10, 3.1-3.18.

Groenewald, T. (2004). A Phenomenological Research Design Illustrated. International Journal of Qualitative Methods, 3(1), 42-55. https://doi.org/10.1177/160940690400300104

Howarth, C., Foster, J., & Dorrer, N. (2004). Exploring the Potential of the Theory of Social Representations in Health Research and Vice Versa? Journal of Health Psychology, 9(2), 229-243. https://doi.org/10.1177/1359105304040889

Jansen, J. E., Wøldike, P. M., Haahr, U. H., & Simonsen, E. (2015). Service user perspectives on the experience of illness and pathway to care in first-episode psychosis: a qualitative study within the TOP project. Psychiatric Quarterly, 86(1), 83-94. https://doi.org/10.1007/s11126-014-9332-4

Jodelet, D. (1991). Madness and Social Representation: Living with the Mad in One French Community. University of California Press.

Min, J. W. (2019). The Influence of Stigma and Views on Mental Health Treatment Effectiveness on Service Use by Age and Ethnicity: Evidence From the CDC BRFSS 2007, 2009, and 2012. SAGE Open, 9(3). https://doi.org/10.1177/2158244019876277

Mjøsunda, N. H., Erikssonb, M., Norheima, I., Keyesc, C. L. M., Espnesd, G. A., & Vinjee, H. F. (2015). International Journal of Mental Health Mental health as perceived by persons with mental disorders: an interpretative phenomenological analysis study. International Journal of Mental Health Promotion, 17(4), 215-233. https://doi.org/10.1080/14623730.2015.1039329

Mojtabai, R. (2010). Mental illness stigma and willingness to seek mental health care in the European Union. Social Psychiatry and Psychiatric Epidemiology, 45, 705-712. https://doi.org/10.1007/s00127-009-0109-2

Morant, N. (1995). What is Mental Illness? Social Representations of Mental Illness among British and French Mental Health Professionals. Papers on Social Representations, 4(1), 41-52.

Moscovici, S. (1973). Health and illness. A social psychological analysis. In C. Herzlich (Ed.), Health and illness. A social psychological analysis. Academic Press.

Ong, W. J., Shahwan, S., Goh, C. M. J., Tan, G. T. H., Chong, S. A., & Subramaniam, M. (2020). Daily Encounters of Mental Illness Stigma and Individual Strategies to Reduce Stigma – Perspectives of People with Mental Illness. Frontiers in Psychology, 11(October), 1-9. https://doi.org/10.3389/fpsyg.2020.590844

Pitt, L., Kilbride, M., Welford, M., Nothard, S., & Morrison, A. P. (2009). Impact of a diagnosis of psychosis: user-led qualitative study. Psychiatric Bulletin, 33(11), 419-423. https://doi.org/10.1192/pb.bp.108.022863

Pope, C., Ziebland, S., & Mays, N. (2000). Qualitative research in health care: analysing qualitative data. BMJ - Clinical Research, 320(7227), 114-116. https://doi.org/10.1136/bmj.320.7227.114

Ritsher, J. B. & Phelan, J. C. (2004). Internalized stigma predicts erosion of morale among psychiatric outpatients. Psychiatry Research, 129(3), 257-265. https://doi.org/10.1016/j.psychres.2004.08.003

Rodríguez, F. (2004). La representación social de la enfermedad y de la institución psiquiátrica en el paciente mental. Cuaderno Venezolano de Sociología, 13(2), 229-247.

Rose, D. & Graham, T. (2010). Service user perspectives on the impact of a mental illness diagnosis. Epidemiology and Psychiatric Sciences, 19(2), 140-147.

Rössler, W. (2013). What is normal? The impact of psychiatric classification on mental health practice and research. Frontiers in Public Health, 1, 1-4. https://doi.org/10.3389/fpubh.2013.00068

Schomerus, G. & Angermeyer, M. C. (2008). Stigma and its impact on help-seeking for mental disorders: What do we know? Epidemiologia e Psichiatria Sociale, 17(1), 31-37. https://doi.org/10.1017/S1121189X00002669

Tassone-Monchicourt, C., Daumerie, N., Caria, A., Benradia, I., & Roelandt, J. (2010). Etats dangereux et troubles psychiques : images et réalités. Encephale, 36(3), 21-25.

World Health Organization [WHO]. (2010). mhGAP Intervention Guide: for mental, neurological and substance use disorders in non-specialized health settings. http://whqlibdoc.who.int/publications/2010/9789241548069_eng.pdf?ua=1

World Health Organization [WHO]. (2013). Mental Health Action Plan 2013-2020. http://apps.who.int/iris/bitstream/10665/89966/1/9789241506021_eng.pdf?ua=1

Ye, J., Chen, T. F., Paul, D., McCahon, R., Shankar, S., Rosen, A., & O’Reilly, C. L. (2016). Stigma and discrimination experienced by people living with severe and persistent mental illness in assertive community treatment settings. International Journal of Social Psychiatry, 62(6), 532-541. https://doi.org/10.1177/0020764016651459

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Published

2022-03-03

How to Cite

Dalla Vecchia Pereira, L. C. ., & Skovdal, M. . (2022). “It pulls you down, but you need it to access the benefits”: the double-edged sword of mental illness diagnosis. Ciencias Psicológicas, 16(1), e-2220. https://doi.org/10.22235/cp.v16i1.2220

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ORIGINAL ARTICLES

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