Modelo híbrido de treinamento parental para mães de crianças pré-escolares com transtorno do espectro autista baseado na análise do comportamento aplicada para redução do estresse parental

Aline Regina Emilio; João Rodrigo Maciel Portes

doi:10.22235/cp.v18i2.3285

Autores/as

Aline Regina Emilio Universidade do Vale do Itajaí https://orcid.org/0009-0007-1654-866X
João Rodrigo Maciel Portes Universidade do Vale do Itajaí https://orcid.org/0000-0003-2512-4491

DOI:

https://doi.org/10.22235/cp.v18i2.3285

Palabras clave:

autismo, formación de padres, telesalud, análisis aplicado del compartamiento, estrés parental

Resumen

Este estudio buscó evaluar los aportes de un entrenamiento parental híbrido realizado con ocho madres de niños preescolares con trastorno del espectro autista basado en la ciencia del análisis aplicado de la conducta para la reducción del estrés parental. Se llevó a cabo la construcción e implementación de un entrenamiento parental híbrido. Se dividió la muestra en grupo de tratamiento y control, y se realizaron comparaciones del nivel de estrés en el período pre/postintervención, así como el análisis de la práctica directa con el niño en un cara a cara con el grupo de tratamiento. Los resultados obtenidos demuestran que las madres del grupo de tratamiento reaccionaron positivamente a los videos y materiales presentados; sin embargo, no se observaron diferencias estadísticas significativas que sugieran una reducción en el nivel de estrés entre los dos grupos. Las limitaciones del estudio fueron el pequeño tamaño de la muestra y el hecho de que los niños de ambos grupos continuaron recibiendo tratamiento de terapia intensiva durante la implementación de la capacitación de los padres.

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Citas

American Psychiatric Association. (2023). DSM-5TR: Manual diagnóstico e estatístico de transtornos mentais (5ª ed. Revisado). Artmed.

Anjos, B. B., & Morais, N. A. (2021). As experiências de famílias com filhos autistas: uma revisão integrativa da literatura. Ciências Psicológicas, 15(1), e2347. https://doi.org/10.22235/cp.v15i1.2347

Borges, L. & Hauck-Filho, N. (2020). Escala de Responsividade Social (SRS-2). Hogrefe.

Camden, C., Pratte, G., Fallon, F., Couture, M., Berbari, J., & Tousignant, M. (2020). Diversity of practices in telerehabilitation for children with disabilities and effective intervention characteristics: results from a systematic review. Disability and rehabilitation, 42(24), 3424-3436. https://doi.org/10.1080/09638288.2019.1595750

Centers for Disease Control and Prevention. (2023). CDC Launches Autism Data Visualization Tool to Improve Access to Data. https://www.cdc.gov/ncbddd/autism/index.html

Constantino, J. N., & Gruber C. P. (2020). SRS II: Escala de Responsividade Social. Hogrefe.

Craig, F., Operto, F. F., De Giacomo, A., Margari, L., Frolli, A., Conson, M., Ivagnes, S., Monaco, M., & Margari, F. (2016). Parenting stress among parents of children with Neurodevelopmental Disorders. Psychiatry Research, 242, 121-129. https://doi.org/10.1016/j.psychres.2016.05.016

Dahiya, A. V., Openden, D., Ostmeyer, K. F., Anderson, R. M., & Scarpa, A. (2021). Pivotal response treatment for autism: A brief report on training for rural communities. Journal of Community Psychology, 49(7), 2983-2994. https://doi.org/10.1002/jcop.22558

Dai, Y. G., Brennan, L., Como, A., Hughes-Lika, J., Dumont-Mathieu, T., Rathwell, I. C., Minxhozi, O., Aliaj, B., & Fein, D. A. (2018). A video parent-training program for families of children with autism spectrum disorder in Albania. Research in autism spectrum disorders, 56, 36-49. https://doi.org/10.1016/j.rasd.2018.08.008

Dancey, C., & Reidy, J. (2018). Estatística Sem Matemática para Psicologia. Penso.

Dawson-Squibb, J. J., Davids, E. L., Harrison, A. J., Molony, M. A., & de Vries, P. J. (2020). Parent education and training for autism spectrum disorders: Scoping the evidence. Autism: the international journal of research and practice, 24(1), 7-25. https://doi.org/10.1177/1362361319841739

Dudding, C. (2013). Reimbursement and telepractice. Perspectives on Telepractice, 3, 35-40. https://doi.org/10.1044/teles3.2.35

Fisher, W. W., Luczynski, K. C., Blowers, A. P., Vosters, M. E., Pisman, M. D., Craig, A. R., Hood, S. A., Machado, M. A., Lesser, A. D., & Piazza, C. C. (2020). A randomized clinical trial of a virtual-training program for teaching applied-behavior-analysis skills to parents of children with autism spectrum disorder. Journal of Applied Behavior Analysis, 53(4), 1856-1875. https://doi.org/10.1002/jaba.778

Hartley, S. L., Papp, L. M., Mihaila, I., Bussanich, P. M., Goetz, G., & Hickey, E. J. (2017). Couple conflict in parents of children with versus without Autism: self- reported and observed findings. Journal of Child and Family Studies, 26(8), 2152-2165. https://doi.org/10.1007/s10826-017-0737-1

Hernández-Sampieri, R., Fernández-Collado, C., & Baptista Lucio, P. (2013). Metodologia da Pesquisa (5a ed.). Penso.

Jorge, G. H., Santos, Y. L. C. M., Portes, J. R. M., & Bossardi, C. N. (2021). Envolvimento paterno de pais de crianças com o Transtorno do Espectro Autista. Boletim - Academia Paulista de Psicologia, 41(101), 175-184. https://doi.org/10.5935/2176-3038.20210018

Kurzrok, J., McBride, E., & Grossman, R. B. (2021). Autism-specific parenting self-efficacy: An examination of the role of parent-reported intervention involvement, satisfaction with intervention-related training, and caregiver burden. Autism: the international journal of research and practice, 25(5), 1395-1408. https://doi.org/10.1177/1362361321990931

Lee, J. D., & Meadan, H. (2020). Parent-mediated interventions for children with ASD in low-resource settings: a scoping review. Review Journal of Autism and Developmental Disorders, 8(3), 285-298. https://doi.org/10.1007/s40489-020-00218-7

Liu, G., Wang, S., Liao, J., Ou, P., Huang, L., Xie, N., He, Y., Lin, J., He, H. G., & Hu, R. (2021). The efficacy of WeChat-Based Parenting Training on the psychological well-being of mothers with children with autism during the COVID-19 pandemic: quasi-experimental study. JMIR Mental Health, 8(2), e23917. https://doi.org/10.2196/23917

Lopes, V. D., Murari, S. C., & Kienen, N. (2021). Capacitação de pais de crianças com TEA: revisão sistemática sob o referencial da Análise do Comportamento. Revista Educação Especial, 34, e19, 1-28. https://doi.org/10.5902/1984686X43768

Louie, A. D., Cromer, L. D., & Berry, J. O. (2017). Assessing parenting stress: Review of the use and interpretation of the Parental Stress Scale. The Family Journal, 25(4), 359-367. https://doi.org/10.1177/1066480717731347

Machado, M. S., Londero, A. D., & Pereira, C. R. R. (2018). Tornar-se família de uma criança com transtorno do espectro autista. Contextos Clínicos, 11(3), 335-350. https://dx.doi.org/10.4013/ctc.2018.113.05

Mackenzie, K. T., & Eack, S. M. (2022). Interventions to improve outcomes for parents of children with autism spectrum disorder: a meta-analysis. Journal of Autism and Developmental Disorders, 52, 2859-2883. https://doi.org/10.1007/s10803-021-05164-9

Meadan, H., Lee, J. D., & Chung, M. Y. (2022). Parent-implemented interventions via telepractice in autism research: A review of social validity assessments. Current Developmental Disorders Reports, 9(4), 213-219. https://10.1007/s40474-022-00259-z

Nevill, R. E., Lecavalier, L., & Stratis, E. A. (2018). Meta-analysis of parent-mediated interventions for young children with autism spectrum disorder. Autism: the international journal of research and practice, 22(2), 84-98. https://doi.org/10.1177/1362361316677838

Parsons, D., Cordier, R., Vaz, S., & Lee, H. (2017). Parent-mediated intervention training delivered remotely for children with autism spectrum disorder living outside of urban areas: systematic review. Journal of Medical Internet Research, 19(8), e198. https://doi.org/10.2196/jmir.6651

Porter, N., & Loveland, K. A. (2019). An integrative review of parenting stress in mothers of children with autism in Japan. International Journal of Disability, Development and Education, 66(3), 249-272. https://doi.org/10.1080/1034912X.2018.1439159

Portes, J. R. M., & Vieira, M. L. (2022). Percepção parental sobre o filho com autismo: as repercussões na adaptação familiar. Revista Psicologia em Pesquisa, 16(2), 1-23. http://dx.doi.org/10.34019/1982-1247.2022.v16.32614

Rahman, A., Divan, G., Hamdani, S. U., Vajaratkar, V., Taylor, C., Leadbitter, K., Aldred, C., Minhas, A., Cardozo, P., Emsley, R., Patel, V., & Green, J. (2016). Effectiveness of the parent-mediated intervention for children with autism spectrum disorder in south Asia in India and Pakistan (PASS): a randomised controlled trial. The Lancet. Psychiatry, 3(2), 128-136. https://doi.org/10.1016/S2215-0366(15)00388-0

Samadi, S. A., Bakhshalizadeh-Moradi, S., Khandani, F., Foladgar, M., Poursaid-Mohammad, M., & McConkey, R. (2020). Using hybrid telepractice for supporting parents of children with ASD during the COVID-19 lockdown: A feasibility study in Iran. Brain Sciences, 10(11), 892. https://doi.org/10.3390/brainsci10110892

Santos, S. V. (2008). Forma reduzada do parenting stress index (PSI): Estudo Preliminar. XII Conferência Internacional Avaliação, Formas e Contextos.

Sella, A. C., & Ribeiro, D. M. (2018). Análise do comportamento aplicada ao transtorno do espectro autista. Appros Editora e Livraria Eireli-ME.

Shepherd, D., Landon, J., Taylor, S., & Goedeke, S. (2018). Coping and care-related stress in parents of a child with autism spectrum disorder. Anxiety, Stress, and Coping, 31(3), 277-290. https://doi.org/10.1080/10615806.2018.1442614

Siu, Q. K., Yi, H., Chan, R. C., Chio, F. H., Chan, D. F., & Mak, W. W. (2019). The role of child problem behaviors in autism spectrum symptoms and parenting stress: A primary school-based study. Journal of Autism and Developmental Disorders, 49, 857-870. https://doi.org/10.1007/s10803-018-3791-7

Sneed, L., & Samelson, D. (2022). Effectiveness of parent-led applied behavior analysis at improving outcomes for parents of autistic children. Journal of Social, Behavioral, and Health Sciences, 16(1), 160-176. https://doi.org/10.5590/JSBHS.2022.16.1.12

Steinbrenner, J. R., Hume, K., Odom, S. L., Morin, K. L., Nowell, S. W., Tomaszewski, B., Szendrey, S., McIntyre, N. S., Yucesoy-Ozkan, S., & Savage, M. N. (2020). Evidence-based practices for children, youth, and young adults with Autism. The University of North Carolina at Chapel Hill, Frank Porter Graham Child Development Institute, National Clearinghouse on Autism Evidence and Practice Review Team. https://ncaep.fpg.unc.edu/sites/ncaep.fpg.unc.edu/files/imce/documents/EBP%20Report%202020.pdf

Tsermentseli, S., & Kouklari, E. C. (2021). Impact of child factors on parenting stress of mothers of children with autism spectrum disorder and intellectual disability: A UK school-based study. Early Child Development and Care, 191(10), 1555-1566. https://doi.org/10.1080/03004430.2019.1658090

Viljoen, M., Mahdi, S., Shelly, J., & de Vries, P. J. (2021). Parental perspectives of functioning in their children with autism spectrum disorder: A global scoping review. Autism: the international journal of research and practice, 25(1), 176-198. https://doi.org/10.1177/1362361320950055

Virués-Ortega J. (2010). Applied behavior analytic intervention for autism in early childhood: meta-analysis, meta-regression and dose-response meta-analysis of multiple outcomes. Clinical Psychology Review, 30(4), 387-399. https://doi.org/10.1016/j.cpr.2010.01.008

Vismara, L. A., McCormick, C. E. B., Wagner, A. L., Monlux, K., Nadhan, A., & Young, G. S. (2018). Telehealth parent training in the Early Start Denver Model: results from a randomized controlled study. Focus on Autism and Other Developmental Disabilities, 33(2), 67-79. https://doi.org/10.1177/1088357616651064

Wilkes-Gillan, S., & Lincoln, M. (2018). Parent-mediated intervention training delivered remotely for children with autism spectrum disorder (ASD) has preliminary evidence for parent intervention fidelity and improving parent knowledge and children's social behaviour and communication skills. Australian Occupational Therapy Journal, 65(3), 245-246. https://doi.org/10.1111/1440-1630.12481

Wong, C., Odom, S. L., Hume, K. A., Cox, A. W., Fettig, A., Kucharczyk, S., Brock, M. E., Plavnick, J. B., Fleury, V. P., & Schultz, T. R. (2014). Evidence-based practices for children, youth, and young adults with autism spectrum disorder. The University of North Carolina, Frank Porter Graham Child Development Institute, Autism Evidence-Based Practice Review Group. https://autismpdc.fpg.unc.edu/sites/autismpdc.fpg.unc.edu/files/imce/documents/2014-EBP-Report.pdf

Wong, C., Odom, S. L., Hume, K. A., Cox, A. W., Fettig, A., Kucharczyk, S., Brock, M. E., Plavnick, J. B., Fleury, V. P., & Schultz, T. R. (2015). Evidence-based practices for children, youth, and young adults with autism spectrum disorder: a comprehensive review. Journal of Autism and Developmental Disorders, 45(7), 1951-1966. https://doi.org/10.1007/s10803-014-2351-z