"Cambia la vida de un día para otro”: Experiencias de madres y padres al cuidado personal de un hijo/a hospitalizado por cáncer

Camila Concha Méndez; Paula Vega Vega; Ivonne Vargas Celis

doi:10.22235/ech.v12i1.2950

Autores/as

Camila Concha Méndez Universidad de Aysén, Chile. https://orcid.org/0000-0001-5141-0091
Paula Vega Vega Pontificia Universidad Católica de Chile, Chile. https://orcid.org/0000-0001-5635-3030
Ivonne Vargas Celis Pontificia Universidad Católica de Chile, Chile. https://orcid.org/0000-0003-2756-7640

DOI:

https://doi.org/10.22235/ech.v12i1.2950

Palabras clave:

cáncer, padres y madres, hospitalización, servicio de oncología

Resumen

Objetivo: Comprender el significado que atribuyen los padres y madres a la experiencia de estar junto a su hijo hospitalizado en una unidad de oncología de un hospital público de Chile. Metodología: Paradigma de investigación interpretativo, enfoque fenomenológico hermenéutico de Van Manen. Se realizó una entrevista en profundidad a 10 participantes y las narrativas se analizaron mediante un análisis temático con enfoque selectivo de lectura. El artículo fue aprobado por el comité de ética de la Pontificia Universidad Católica de Chile. Resultados: La experiencia de hospitalización significó “cambiar la vida de un día para otro”; este resultado se conformó por dos estructuras: 1) “Cuando te dan el diagnóstico se te derrumba el mundo”, que contiene momentos difíciles como la hospitalización en que reciben el diagnóstico, los momentos en que el hijo/a sufre, las situaciones de riesgo vital, el cansancio de las madres y padres y los cambios que afectan a la familia, y 2) “Recibir una luz de ayuda durante la hospitalización”, que describe la importancia de un espacio físico tranquilo, de un equipo de salud con un trato cariñoso y de compartir experiencias con otras madres y padres. Conclusiones: La hospitalización representa una transformación en el mundo vida de los padres y madres, es vital que el equipo de salud atienda las necesidades físicas y emocionales que derivan de este cambio en el espacio y relaciones que estos vivencian.

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